It was bound to happen, even a Super Mom needs a break...enter in Super Daddy. No stranger to hospital CF life himself, Daddy should fill in sufficiently for Mom, although granted, Daddy is a little more scruffy looking. It is also apparent that I have large literary shoes to fill in writing on Mom's blog, but alas I digress.
After a week without Mom and Sage, and with Nana and Pop Pop lending 'Ellie watching' duties while I was at work, Ellie and I made the 3 hour drive to UNC to find Sage like we left him, cute, loud, crazy, and playing video games - just as I was hoping to find to him, and Mom no worse for where, because she is Super Mom after all.
I finally convinced Mom to leave, so she could start her short but needed break. Taking Ellie in tow for some quality Mom and daughter time, they finally headed to the hotel.
What I first noticed after not seeing Sage for a week is his face. It's slightly chubby. Which if you know anything about CF is a great thing to see. Typically when a CF child, or adult for that matter, gets admitted there is a weight loss Not in this case. As with his last admit into UNC a couple weeks ago, Sage has gained 4 POUNDS since Monday!!!
Rare AFB bug, kidney problems, liver failing, who cares, bring on the GRUB!!! As a typical Louviere, Sage is all about the food. It's nice to see some family traditions stay alive no matter what adversities are faced. His face was also not as red as I was expecting it to be. However, I'm told a couple hours after he receives his steroids that he does go strawberry again.
We are now in the phase of subtracting some drugs, and adding others. It's not a fun game to see played on your child, but I guess is a necessarry evil to kill this bug and get him home. However one look around the hospital ward, seeing what other families are going through, and the severity of their situation, it does put things into perspective.
Did I mention we also had a surprise visit from Sage's favorite nurse Scott. After a 12 hour shift he stopped in to say hi, and see what how he is doing. That's why we love UNC, the nurses actually care.
So tonight we will have more Sage and Daddy hugs...(whether he wants them or not :-). We will watch cartoons ( it would be the Saints game, but I can't emotionally watch Seattle keep beating our defense on the deep ball....Geaux Saints!!), and we will count the days until I can hopefully take my son home for good.
He doesn't know it, but I will watch him sleep, praying for a better tomorrow.