Sage met 3 of the best specialist doctors in the country today. Like any happy family, all of them disagreed with each other about what this rash is and what caused or is causing it.
Leading dermatology expert said it's D.r.e.s.s. (you can google Dress syndrome) which has A 10% MORTALITY rate. Not good when the things he has are measured by chances of death. That's beyond disheartening.
The leading allergist says it's severe IgG reaction, also life threatning.
His CF doctor is just about in tears,(I could tell) and she is tough.
All of the possibilities are very serious and could have lasting organ damage.
I feel dizzy and I have a headache.
So, Sage and his rash are watching TV, and Mom is gonna lay down for a while and avoid all doctors and totally avoid all medical journals. I will go in the tiny room bathroom and have my meltdown after he goes to sleep.
I just can't do this right now.
In my own personal hell watching my son try to win a totally unfair fight....again, and go through torturous amounts of pain.....
skin biopsies (he now has stitches in his back) :o(
.....I will put on the happy face, post some photos from today, and snuggle with Sage, crying my eyes out in my heart, but telling him it will all be ok. I hope.
|Still smiling! You have no idea what he has been through today. My Hero.|
|Our Room....Christmas Cheer?|
|Mom's origami snowflakes|
|Mommy n Me|
|Skin biopsy and stitches. That was awful.|
No more medicines to treat his infection.
So hope is all we've got.
I'll take it.