Tuesday, November 30, 2010

5C15, Day 2

Sage has been poked for blood draws and IV's 11 times now.  Tonight at midnight will be # 12.  This....and the horrible bandage tape....for Sage, is the worst part of CF.
It's funny how it takes a 6 yr old, scared of tape removal, to point out how the fight against CF is easy.  He can do his treatments, take all his medicines, stay "not-sick"....but Mommy, I really REALLY hate that tape.  It really REALLY hurts.
My little man.  So strong.

When they had to  pull off the big dressing with tape covering the PICC line in his arm, he did everything to hold back the tears and be strong.   He said to the nurse..."is it ok to be scared of the tape?" and he started to cry.  The nurse replied in a gentle and caring way, its ok to be scared, I know for you it's a lot to go through and I will do my very best, just like you do.

My strong little man.  Times like this my heart just bleeds for him, and at the same time I am so thankful to be HIS mommy.
He really really wanted to show off his PICC line, probably because he was so strong peeling off that big tape and he is very proud, and so am I.  I debated not posting it, but what the heck do I know....
He thinks the blood is the coolest part  :-)

So, we had a special Mommy and Sage Christmas night.  I went to the cafeteria and bought us 4 different kinds of chips, we snuggled up in his hospital bed, and we watched a Christmas classics marathon...Grinch who stole Christmas, Rudolph the Red Nosed Reindeer, and the Rockefeller tree lighting.  With some mommy hugs, all was right with the world again.....

A special thank you to Nana and Nannie, Mal and Nick for their cool Toys, balloons and chocolate treats  :-)  Sage was very very happy to see that someone besides mommy knew he was here at the hospital.  I reassured him that EVERYONE knows he is here and is cheering him on everyday....and showed him all the people who have left comments on facebook and the blog for him.  He said Wow, that's as many people as at Thanksgiving at Nana's....and that is a LOT....so that was kinda funny  :-) 

And so, with another "blood shot" looming in 48 minutes...we will end this day with happy thoughts of peace and blankie love  :-)

                                                 night night super-sage.  i love u more than u will ever know <3
                                                                                xoxo, Mommy


  1. Awww what a great little guy! Tell him I hate tape too!
    Hang in there! Love you guys!

  2. Hurry home. Daddy misses you. I've got no one to jump on top of me, and there is no one to bug Ellie :-(

    Keep Mom in line.
    Love, Dad and Ellie

  3. Tell Sage I had tape ripped off my arm yesterday too, and it really hurt! I agree, I think it is the worst part of treatment! Good Luck Buddy and come home soon! Love you

  4. Sage, Eston is 6 yrs old with CF like you. He doesn't like the tape either! He would agree with you that it is one of the worse parts of CF. Danielle, Do they have "release" there? It looks like an alcohol swab and makes removing tagaderm 100% easier on them. It stinks terrible but works wonders.