We are here. And so we begin.
We arrived at 10:30am, on orders that Sage can't eat or drink after 7am (we left 5 mins later). The 3hr 10min. drive....then lugging 2-50lb suitcases + his vest compressor and pillow pet from the parking garage to the hospital entrance...only 7 city blocks away. No problem (ahem). Sage toted his 35 lb vest the entire way. Super-Sage! He actually couldn't wait to get checked into the hospital to rest...maybe we are on to something here....
Well, anyway, check in, get a room, unpack like it was vacation, meet and greet all the "not quite doctors", Nurses did their thing....then we waited, and waited....and waited. The 1:00pm PICC team finally arrived at 3:30, which was for Sage half past STARVING. After 4 different failed IV attempts, I had to insist we call up the pro's from phlebotomy, and she had immediate success. The PICC team took about 40 minutes to place the line with some complications, but with a lot more sedation than planned, Sage slept through most of it, with his little dog, Jellybean.. Waking up at 6:30pm, the only thing he wanted to do was play the Wii...and has been playing ever since.
He sits here happy as a clam with the promise that he could play 100 hours of Wii if he wanted to, and I plan on sticking to that promise. And, 1 hour after he ate all that food, poor kid is still hungry and wants some bacon. OOohhhhhHHH...don't let me forget to tell all you CF care-givers about "Bacon.... in a BOX!" No fridge needed. Just open and eat. This is the scariest and greatest science/food ever invented.
Happy Day 1 of our vacation in Club Med UNC Chapel Hill! :-D
Mommy of Sage and Ellie